Thursday 30 March 2017

I did it. My visions of a walk on the prom were scuppered with the weather but Malaika, Amelie and I spent time chatting, singing and laughing as i walked 5 miles on the treadmill. Malaika excitedly gave me my medal and then asked if i had cured Diabetes. My heart broke. We need a cure. Please take a look at the challenges we have. Some are 1km, some are further. Help us find a cure for diabetes xxx http://ift.tt/2gInRkB


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Calling all parents! I am trying to organise a nationwide "onesie" run to raise funds for JDRF to help find a cure. I have bought silicone medals for all of the children who participate. Registration would be £5 and all profit would be donated to JDRF via Mission Find a cure. (Can be paid direct or people can ask for sponsorship) I am asking people to help organise a run or walk in their local area. It can be a toddler dash, once around a field, up and down the lane, you would be able to determine how far you want the run to be. Perhaps you could ask your kids school, playgroup, your church, athletics club Once you have an idea of numbers i would send you medals to hand out on the day. Please let me know if you are interested in helping set something up. http://ift.tt/2oBtZix http://ift.tt/2gFkUGb


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Monday 27 March 2017

5k challenge ✔ Medal received ✔ Have you signed up? http://ift.tt/2gInRkB


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Kilimanjaro leaderboard. Are you up for the challenge to virtually climb the height of Kilimanjaro (stairmaster/mountains/stairs) to help find a cure for type one diabetes? 100% of profit donated to JDRF to help find a cure Check out http://ift.tt/2na0nbv for details


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1000 mile leaderboard. Are you up for the challenge to walk/run/swim/bike 1000 miles to help find a cure for type one diabetes? 100% of profit donated to JDRF to help find a cure Check out http://ift.tt/2na0nbv for details


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1000 km leaderboard. Are you up for the challenge to walk/run/swim/bike 1000km to help find a cure for type one diabetes? 100% of profit donated to JDRF to help find a cure Check out http://ift.tt/2na0nbv for details


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Little Miss Malaika just did her 5k for the first of her 4 seasons challenges. To take part sign up here http://ift.tt/2gInRkB 100% of all money raised will be donated to JDRF to help find a cure for Type one diabetes


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Friday 17 March 2017

#SuperheroShoutout Finn’s Story "He’s a typical 3 year old!” everyone said. “It’s normal behaviour, don’t worry!”, they said. Was it? I didn’t quite believe what people were saying to me, I thought it was one of those things they said to try and stop mums worrying. I went with the majority verdict and got on with family life. The 3 year old? Our little boy, Finn. Finn was going through some severe mood swings, uncontrollable tempers where he would scream as though he was in pain. All apparently ‘normal’ according to the professionals. The tempers gradually became worse. He started wetting himself at bedtime and was getting infection after infection. Looking back he was probably a very poorly 3 year old, not a typical one. Finn woke up early one morning with a really bad cough and struggling to breathe. We called NHS Direct and they said to take him to A&E and get him checked over. Off we went. We got seen very quickly and they diagnosed Finn with croup. They gave him some steroid medicine and the usual Calpol. The doctor then asked “aside from the cough, how is he in himself? Going to the toilet ok?”. We mentioned the mood swings but that Finn was late in toilet training and that he was generally good at going when he needed to but at night he begun to wet the bed. The doctor asked to check his urine just to make sure there was no other infection anywhere. Finn was very willing to go ‘point Percy in a special pot’, and smiled his cheeky smile to the nurse that took it off him. It was probably only a few minutes after that when the doctor came back with the nurse holding a blood sugar monitor. It was as though he knew by looking at us that there was something else was wrong. He asked us if we’d heard of Diabetic Ketoacidosis or DKA, I knew then what he was telling us. I broke down right there and then. They pricked Finn’s finger and it read 23.8 for his blood sugar and his ketones were 7.4. I’d never heard of ketones before but we were told that in a non-diabetic, levels are normally below 0.6. Finn’s levels were extremely high and that he is classed as a medical emergency. They told us that if we hadn’t gone in when we did, he would have been in a coma within a couple of weeks. We were admitted straight away into the children’s ward and Finn had a cannula fitted ready for a drip. Finn’s grandma has type 1 so I had grown up with it but a lifetime of watching someone else cope was nothing compared to what we were about to be faced with. How do you tell your child that he’s going to have to inject himself whenever he wants to eat anything and that he will forever have to prick his finger at least 7 times a day? Finn spent almost a week in hospital adjusting to life as a diabetic. We learnt how to administer the injections, how to do the finger tests, how to recognise a hypo, what do to do if he falls into a diabetic coma and quickly learnt about all things linked to diabetes. Finn didn’t take to injections very well and was having between 6 and 8 injections a day. With this came a lot of anger and a lot of tears. Thankfully, Finn went onto pump therapy a few months and whilst this took away the fear of injections and allowed him to eat more freely like a normal child of his age, it means that he is permanently attached to his pump via a cannula and tube. Since Finn was diagnosed with Type 1 Diabetes on 14th November, a date I later learnt is World Diabetes Day, he is amazing with it and he doesn’t let it stop him doing anything. He has little breakdowns (only with us at home) fairly often and it’s not easy watching him go through it, but we do what any parent would do and try comfort him as best we can. Finn has found a love of football and Leeds United and it currently on trials with them (proud mum alert!), whenever possible he gets to go to Elland Road to watch his dream team! He’s a different child when he’s there and I’m so proud of him and the young man he is turning into. A few months ago my daughter (4 years old) and myself took part in a trial to see if either of us are likely to develop type 1 diabetes. My results came back negative, but my daughters have come back positive and we have been told that she’s basically a ticking time bomb. Not good news, but at least we are prepared and we now monitor her closely so that she won’t get poorly before diagnosis. Every cloud has a silver lining I suppose. Victoria - Finn's Mum

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#SuperheroShoutout It's time to meet some of the people with Type One Diabetes. This is Alfie, he was diagnosed with T1 in June 2015 aged 4 and a half. He had a virus then for next 2 weeks he was constantly hungry adn drinking sports bottle after sports bottle of water he was being grumpy, didn't notice at the time but lost weight. I took him to the doctors not sure what it was but knew it wasn't right he did a urine sample and straight away we were told he had type one diabetes I just burst into tears I never imagined in the world it would be diabetes! Went straight to hospital and my little soldier took it all in his stride he had drank so much water his sodium levels were dangerously low so had over night stay with them limiting him to 50mls of squash to help bring them up, that was the only thing that upset him. He was so brave! Us as parents felt like our world was falling apart, but he just took it in his stride even now with the hypers or hypos he just sails through. I am and always will be proud of this amazing boy & all the children fighting this every day. Laura Parker (Alfie's Mum) To be featured, please send a message to bethan@missionfindacure.com


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Tuesday 7 March 2017

A huge congratulations to the lovely Lina for completing her Kilimanjaro challenge on a stairmaster! She is the first to complete the challenge and I can't wait for her to receive her medal. There is no time limit on this medal and you could also do it as part of a team. 2578 flights of stairs in as long as it takes. To take part visit http://ift.tt/2mglYjb


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Half girl half machine. This is the reality of staying alive for a T1 diabetic. Malaika has 2 pieces of machinery keeping her alive which she needs to wear 24/7 She doesn't fuss, she doesn't complain. Despite the fact they hurt to put in and are awkward and in the way. The one on the right monitors her blood sugar continually and is able to alert me if something is wrong. The one on the left is a small tube delivering insulin constantly, acting as the mechanism of her pancreas. My brain is the decision maker for both of these. She also has to prick her finger 8 times a day to test her blood sugar. One mistake from me, one misfunction of any of these machines and she could become very poorly. I'd love a cure so I could unhook these machines forever. http://ift.tt/2gInRkB


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Monday 6 March 2017

Wales challenge week 9. First time I have made this leaderboard, but will be making it weekly from now on. No time limit on this challenge, virtually walk the coast of Wales on your own or as part of a team (share the distance) Still time to take part if you want to join in. Every sign up takes us one step closer to a cure for type one diabetes. http://ift.tt/2mayKjf


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Kilimanjaro challenge week 9. First time I have made this leaderboard, but will be making it weekly from now on. No time limit on this challenge, virtually climb the highest mountain in Africa on your own or as part of a team (share the distance) Still time to take part if you want to join in. Every sign up takes us one step closer to a cure for type one diabetes. http://ift.tt/2mayKjf


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1000 mile challenge week 9. Still time to take part if you want to join in. Every sign up takes us one step closer to a cure for type one diabetes. http://ift.tt/2mayKjf


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1000km challenge week 9. Still time to join if you are interested. http://ift.tt/2mayKjf Every sign up takes us one step closer to a cure for Type One Diabetes.


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