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Monday 27 February 2017
Tuesday 21 February 2017
Why not get your walking shoes on and do a challenge with us to help cure #typeonediabetes http://ift.tt/2gInRkB
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Diabetes: Just imagine for a second…. Just imagine with me for a moment if you will. Imagine your child in front of you, and a doctor at your side. The doctor tells you that your child’s lungs are starting to give up, and within a matter of weeks they won’t work anymore. They will merely be a defunct organ inside their otherwise perfect body. Imagine the instant fear and worry. Then, stay with me. Imagine the doctor handing you a small medical device, no bigger than your hand. Then imagine him walking to your child and attaching a similar device to her body via an injection and connecting the two via bluetooth. Still here? Good, Now, finally imagine the doctor explaining that you need to be your child’s lungs from now on. That you can set the device in your hand to tell the device in her body how many times her lungs need to inhale and exhale every hour. But the device will need programming for every hour. You will need to inject her in a fresh site every two to three days, even those of you who are terrified of needles will need to become a dab hand at cannula changes. You will need to tell the device when she is exercising and will need to breathe more rapidly. It will also need to know when she is sleeping so you can slow her inhale/exhale down to a nice resting rhythm. But don’t forget if she has a nightmare she will need to breathe quicker again – how can you pre program for that. In your hands you hold your child’s new lungs – you are your childs new lungs. You need to pre plan their day, pre empt what to do when they go for a sudden dash across the playground. You need to live with the knowledge that if you get it wrong, you may be a factor in making your little loved one terribly ill. I struggle to imagine being my child’s lungs. But I am my daughter’s pancreas. I control how much insulin she has an hourly basis, I factor in how exercise will lower her blood sugars and stress will send them sky-high. I try to manage how hormones will impact on her insulin needs, and I spend most nights by her side, checking her blood sugars making sure that what I have programmed that day wasn’t wrong. That I am not a factor in causing my child to become terribly ill. Not everyone understands Type 1 Diabetes – they think it is a condition that can be controlled with time. It isn’t, it can be controlled only by a parent or eventually the child themselves. We were not made to be our children’s lungs or pancreas’, and some days the thought of acting as an organ can be rather exhaustivingly overwhelming. But it is not a choice, simply a challenge. Can you imagine being an organ? I can.
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Monday 20 February 2017
1000 mile challenge week 7 leaderboard To take part visit http://ift.tt/2lCz5Nz
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Week 7 leaderboard for 1000km challenge. To join in please visit http://ift.tt/2lCqJFC
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Sunday 19 February 2017
Over just as quick as it started. We aren't out of the woods, but we are doing well. Life is so incredibly short, it takes something like this to remind you just how blessed your life is despite it all. Please help me find a cure for #TypeOne #diabetes so that more parents don't have to learn how hard caring for a child with this devastating illness is. http://ift.tt/2gInRkB
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This morning at 4am my beautiful, wonderful little girl was rushed to hospital with diabetic ketoacidosis. I test her sugar at night as standard, but last night I missed something and it caused her to become very poorly. She is still very poorly, but after hours of hard work from the HDU staff she is on the mend. I have been feeling disheartened about the year, wondering if I was really going to make a difference. And this is a wake up call that even £1 raised or donated is £1 closer to a cure. To sign up http://ift.tt/2gInRkB To donate http://ift.tt/2kLXNH0 Thank you
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Friday 17 February 2017
So February is ending up being a 'rest month' First there was the problem with my foot, it wasn't a big problem, but as a Type one diabetic, any issue with my feet is a big problem. The feet, along with kidneys and eyes are the first things to be damaged with type one. The glucose in the blood 'scratches' the veins, arteries and capillaries and then scar tissue forms as it heals. The scar tissues cause blockages meaning that blood can't get where it needs to go. The capillaries are tiny little tubes and they allow blood flow into the smallest spaces, and these are the ones that bear the brunt of the damage. The feet have many many capillaries so great care has to be taken not to cause additional damage. Secondly, I have a cold. We all have colds, but I also have type one. How much can having type one actually increase the risks from having a cold? Well quite a lot actually. When you are sick, stress hormones raise your sugar by triggering a release of glucose from your liver (good job body) The body also creates ketones. Ketones are an acid created when The body burns fat for fuel (a standard response with sickness to help your body fuel through the illness) The level of ketones i like to see is 0 although 0 - 0.6 is considered normal. If Malaika has ketones of over 3.0, I am advised to take her to A+E as it's a sign that something is going really wrong in her body. My ketones on Wednesday were 4.8 - 5. If Malaika had this cold, and had ketones that high, the chances are that she would be in intensive care Thankfully as an adult, who recognises different symptoms, I was able to make an appt with the GP and self manage as much as possible and I am now on the mend, but the cold has settled on my chest. This has caused huge blood glucose spikes, meaning I need more insulin. Exercising when you have a lot of insulin on board is not at all recommended as the energy use can happen too quickly resulting in dangerously low blood glucose. I am not giving up, but sadly this month has not gone to plan. Type One is a very serious illness, it can cause a cold to kill. I will continue with the year long plan of 10000km, but may have to rethink the monthly challenges as I took my health for granted when I was planning this, and completely forgot how harsh T1 diabetes is.
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The 1000 mile challenge Walk/run/skip/cycle/swim 1000 miles to receive this awesome medal 100% of profits to JDRF UK to help find a cure for Type One Diabetes http://bit.ly/2fjOy2Z
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Tuesday 14 February 2017
Just a little update. A week of solid rest and my foot *seems* fine. I tried the treadmill yesterday, but I have a chest coughs so I wasn't on their long. Fingers crossed I will be back to it soon! ♡
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Monday 13 February 2017
Week 6 leaderboards, lovely to see some new names on there. People are still joining up, why don't you? http://ift.tt/2gInRkB
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Week 6 leaderboards, lovely to see some new names on there. People are still joining up, why don't you? http://ift.tt/2gInRkB
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Wednesday 8 February 2017
So I have tendonitis in my foot. I have been prescribed painkillers, rest and RICE. It's not what I had hoped for, but am glad it's something that can be treated. I am giving myself 2 full days of rest (to include normal walking, but not training/challenge) and then I will see where we are. I always said I won't compromise my health for the challenge, and I won't. I still have plenty of time to make up the mileage and I intend to. Thank you for all of your continued support. ♡
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Day 38 7 February 2017 Fell asleep on the couch with just over 100 steps to go last night! I am off to the Dr this morning as I have woken to a painful creaking foot. Will feed back later #10000kmIn2017 total km 680.75/10000 #MissionFindACure February daily Day 7 - 28836/29000 Day 6 - 33483/29000 Day 5 - 21862/29000 Day 4 - 29251/29000 Day 3 - 29865/29000 Day 2 - 31043/29000 Day 1 - 29096/29000 January steps 603876/542000 http://ift.tt/2iyeDJM #MilesForMalaika
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Tuesday 7 February 2017
Day 37 6 February 2017 Made up a few steps yesterday, slowly getting over my cold so didn't manage to run and I am starting to HATE the treadmill with a passion, thank goodness spring is on its way and I can start getting outside more. Passed the 400 miles in 2017 mark yesterday so am really happy with my progress for the year. #10000kmIn2017 total km 660.60/10000 #MissionFindACure February daily Day 6 - 33483/29000 Day 5 - 21862/29000 Day 4 - 29251/29000 Day 3 - 29865/29000 Day 2 - 31043/29000 Day 1 - 29096/29000 January steps 603876/542000 http://ift.tt/2iyeDJM #MilesForMalaika
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Monday 6 February 2017
Week 5 1000 mile challenge. Another great week from our supporters. If you want to take part, please have a look at the challenges at http://ift.tt/2gInRkB Challenges from 1km to 1000miles and all finishers get a custom medal. 100% of profits to JDRF to help find a cure for Type One Diabetes
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Week 5 1000km challenge. Another great week from our supporters. If you want to take part, please have a look at the challenges at http://ift.tt/2gInRkB Challenges from 1km to 1000miles and all finishers get a custom medal. 100% of profits to JDRF to help find a cure for Type One Diabetes
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Sunday 5 February 2017
Day 36 5 February 2017 Really sad that I didn't make it to 29000 today, I was 7138 short. I will make it up in the month at some point, I just felt rotten today with a cold and sore throat and blood glucose through the roof. I still managed a 2.8 mile run (although I was scheduled to run 14) and did walk 7.1 miles (don't even have the energy to round it to 10 miles!) Bed now, hope to feel better tomorrow because these miles are going to run themselves! #MightierThanTypeOne #10000kmIn2017 total km 633.97/10000 #MissionFindACure February daily Day 5 - 21862/29000 Day 4 - 29251/29000 Day 3 - 29865/29000 Day 2 - 31043/29000 Day 1 - 29096/29000 January steps 603876/542000 http://ift.tt/2iyeDJM #MilesForMalaika
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Day 35 4 February 2017 Yesterday's total. The exhaustion and starting of a cold made yesterday a real struggle. Both girls are doing better, but it has inevitably passed to me. I am scheduled for my long run today, so I will do that and then may possibly introduce a rest day. I always said I would never compromise my health for this challenge, so we will see. Happy Sunday everyone! #10000kmIn2017 total km 617.98/10000 #MissionFindACure February daily Day 4 - 29251/29000 Day 3 - 29865/29000 Day 2 - 31043/29000 Day 1 - 29096/29000 January steps 603876/542000 http://ift.tt/2iyeDJM #MilesForMalaika
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Saturday 4 February 2017
Day 34 3 February 2017 Had a VERY early night last night, was in bed by 8pm. It was much needed and I have to start altering my sleep schedule as my body is getting tired. And I'm glad I did, because at 11pm Malaika woke up poorly. She has caught Amelie's head cold and sore throat. Not the end of the world you say, and I agree, unless you are type one. Being sick makes your body insulin resistant, meaning that you need to give more insulin to bring down blood sugar than you would when not sick. The body fighting infection raises blood glucose because the hormones produced to combat illness also raise blood glucose. Your body also produces ketones, which normally are nothing to worry about, but when present with high blood glucose it can turn the blood acidic, and can lead to severe complications including death. The best way to get rid of ketones is with insulin. All of the extra insulin requirements mean that a simple cold or infection means that you have to inject a significant amount more insulin than normal, and to combat high blood glucose and ketones last night I had to inject Malaika with a very large dose, a potentially fatal dose. Which meant that I was checking her blood glucose every hour (except 3 and 4am as I slept through my alarm) Lazy day for the girls today, but I will be continuing with my miles to try and gain support to help find a cure. A cold can't kill you, they often say. If you habe type one, they are wrong. #10000kmIn2017 total km 595.72/10000 #MissionFindACure February daily Day 3 - 29865/29000 Day 2 - 31043/29000 Day 1 - 29096/29000 January steps 603876/542000 http://ift.tt/2iyeDJM #MilesForMalaika
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Thursday 2 February 2017
Day 33 2 February 2017 Today's totals, which include 2000 steps from midnight last night to make up yesterday's total. I am enjoying seeing my fitness improve and love that more and more people are joining the challenges. #10000kmIn2017 total km 572.82/10000 #MissionFindACure February daily Day 2 - 31043/29000 Day 1 - 29096/29000 January steps 603876/542000 http://ift.tt/2iyeDJM #MilesForMalaika
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Day 32 1 February 2017 So yesterday I began my February challenge to walk/run 29000 steps a day, each step representing one of the 29000 children living with Type One Diabetes in the UK. We left the house at 8am and drove to South Wales, we spent a couple of hours in meetings, then spent a few hours with family and then drive home. We arrived back around 10pm and I still had a fair few miles to complete to meet my goal. I was exhausted, but put the girls to bed and got on the treadmill. I didn't make my goal before midnight sadly despite my very very best effort I only made it to 26393 by midnight. I kept going and ran the last mile and a bit just to get it done! So I got it done by 00.22 I wasn't going to fail on the first day! Malaika's challenge this month is to walk 29000 steps every week, but forgot to put on her watch yesterday so we will start today! #10000kmIn2017 total km 546.08/10000 #MissionFindACure February daily Day 1 - 29096/29000 January steps 603876/542000 http://ift.tt/2iyeDJM #MilesForMalaika
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Wednesday 1 February 2017
TGIF....thank goodness it's February, January just seemed to go on forever! My Mission Find a Cure challenge for February is to walk 29000 steps a day, There are 29000 children in the UK living with Type One Diabetes so each step taken represents one of them. I am going to struggle with this one today, because we are spending a lot of time in the car, but I will get it done, because I am doing it to help raise money to find a cure for Type One Diabetes and being T1 means that even if its inconvenient, its always a priority. The medal available this month is again the 'PROUD' medal, if you are proud of someone, take part and let them know that you did the walk for them. http://ift.tt/2gInRkB
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